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Using the Spina Bifida Life Course Model in Clinical Practice: An Interdisciplinary Approach

Dicianno, BE and Fairman, AD and Juengst, SB and Braun, PG and Zabel, TA (2010) Using the Spina Bifida Life Course Model in Clinical Practice: An Interdisciplinary Approach. Pediatric Clinics of North America, 57 (4). 945 - 957. ISSN 0031-3955

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The Life Course Model for patients, families, caregivers, teachers, and clinicians was developed with support by the National Spina Bifida Program, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, for individuals with spina bifida. The Life Course Model facilitates a developmental approach to assessment and intervention along life's trajectory. This Life Course Model provides information about key developmental milestones for particular age groups, validated assessments that can be performed by clinicians or teachers to determine if milestones have been reached, useful suggestions for intervening in creative ways at each step, and evidence-based references. In this article, the authors introduce the viewpoints of several key clinicians who are involved in the care of individuals with spina bifida and how the Life Course Model can assist them, their patients, and their families in the process of assessment, intervention, collaboration with other clinicians, and follow-up. A case study is used to demonstrate the experience of comprehensive and collaborative management in transitioning a child and his family from infancy to adulthood. © 2010.


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Item Type: Article
Status: Published
CreatorsEmailPitt UsernameORCID
Dicianno, BEdicianno@pitt.eduDICIANNO0000-0003-0738-0192
Fairman, AD
Juengst, SBsbj7@pitt.eduSBJ7
Braun, PG
Zabel, TA
Centers: Other Centers, Institutes, Offices, or Units > Human Engineering Research Laboratories
Date: 1 August 2010
Date Type: Publication
Journal or Publication Title: Pediatric Clinics of North America
Volume: 57
Number: 4
Page Range: 945 - 957
DOI or Unique Handle: 10.1016/j.pcl.2010.07.014
Schools and Programs: School of Health and Rehabilitation Sciences > Rehabilitation Science and Technology
Refereed: Yes
ISSN: 0031-3955
Article Type: Review
MeSH Headings: Continuity of Patient Care--organization & administration; Humans; Interdisciplinary Communication; Models, Organizational; Program Evaluation--methods; Quality of Life; Spinal Dysraphism; United States
PubMed ID: 20883884
Date Deposited: 03 Oct 2012 21:48
Last Modified: 04 Feb 2019 19:55


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