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Defining the subject of consent in DNA research

Mitchell, GR and Happe, K (2001) Defining the subject of consent in DNA research. Journal of Medical Humanities, 22 (1). 41 - 53. ISSN 1041-3545

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Abstract

The advent of population-specific genomic research has prompted calls for invention of informed consent protocols that would treat entire social groups as research subjects as well as endow such groups with authority as agents of consent. Critics of such an unconventional ethical norm of "group consent" fear the rhetorical effects of approaching social groups with offers to participate in dialogues about informed consent. Addressing a specific population as the collective subject of genomic research, on this logic, adds currency to the potentially dangerous public opinion that such a group is bound by genetic ties. The paper considers the problem of group and individual identity within the rhetorical dynamics of the discourse and politics of consent. © 2001 Human Sciences Press, Inc.


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Details

Item Type: Article
Status: Published
Creators/Authors:
CreatorsEmailPitt UsernameORCID
Mitchell, GRgordonm@pitt.eduGORDONM
Happe, K
Centers: University Centers > University Center for International Studies (UCIS)
Date: 1 January 2001
Date Type: Publication
Journal or Publication Title: Journal of Medical Humanities
Volume: 22
Number: 1
Page Range: 41 - 53
DOI or Unique Handle: 10.1023/a:1026686027418
Schools and Programs: Dietrich School of Arts and Sciences > Communication: Rhetoric and Communication
School of Medicine > Clinical and Translational Science
Refereed: Yes
ISSN: 1041-3545
Date Deposited: 29 Oct 2012 15:50
Last Modified: 19 Oct 2017 04:55
URI: http://d-scholarship.pitt.edu/id/eprint/16019

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