The psychosocial effects of huntington's disease on patients and their families

Monaghan, Rachael (2013) The psychosocial effects of huntington's disease on patients and their families. Master Essay, University of Pittsburgh.

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Abstract

Huntington’s disease (HD) is a hereditary condition that affects the brain and nervous system. The gene associated with HD was identified in 1993 and was one of the first conditions for which presymptomatic testing became available, allowing individuals to know that they will develop this disease in the future. Genetic counselors provide information about HD to individuals along with the necessary support to cope with this knowledge. The public health significance of this essay is to examine the psychosocial issues facing individuals within the HD community whose lives are touched with HD in some way, to better address these issues with the necessary support and services. Common issues facing these individuals are increased stress, depression, feelings of isolation, guilt, fear, anger, and anxiety, to name a few. The purpose of this essay is to explore the psychosocial issues faced by the individuals tested for HD, the individuals affected with HD, and the caregivers, partners, and children of affected individuals.

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Details

Item Type:	Other Thesis, Dissertation, or Long Paper (Master Essay)
Status:	Unpublished
Creators/Authors:	Creators Email Pitt Username ORCID Monaghan, Rachael
Contributors:	Contribution Contributors Name Email Pitt Username ORCID Committee Chair Gettig, Elizabeth bgettig@pitt.edu BGETTIG UNSPECIFIED Committee Member Suski, Valerie suskivr@upmc.edu VRS9 UNSPECIFIED
Date:	15 April 2013
Date Type:	Publication
Access Restriction:	No restriction; Release the ETD for access worldwide immediately.
Publisher:	University of Pittsburgh
Institution:	University of Pittsburgh
Schools and Programs:	School of Public Health > Human Genetics
Degree:	MPH - Master of Public Health
Thesis Type:	Master Essay
Refereed:	Yes
Date Deposited:	06 May 2015 20:38
Last Modified:	14 Mar 2021 11:02
URI:	http://d-scholarship.pitt.edu/id/eprint/18532

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