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The social and familial history of Down syndrome in the United States with current perspectives

Heil, Raechel (2017) The social and familial history of Down syndrome in the United States with current perspectives. Undergraduate Thesis, University of Pittsburgh. (Unpublished)

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The societal and familial perspective of individuals with Down syndrome over the past 100 years was analyzed to discover how the United States as a society values interactions with these individuals during different ages in their life span. By completing a literature review, and conducting online Qualtrics surveys and personal interviews, we further explored the experience of parents of children with Down syndrome. Through thematic analysis with survey and interview data, we found parents experience high overall life satisfaction. However, parents’ experiences varied during different life stages of their child, with changing needs for their child and specific complications with other members of society, such as healthcare professionals, family, and peers.


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Item Type: University of Pittsburgh ETD
Status: Unpublished
CreatorsEmailPitt UsernameORCID
Heil, Raechelrkh10@pitt.edurkh10
ETD Committee:
TitleMemberEmail AddressPitt UsernameORCID
Thesis AdvisorBendixen,
Committee CoChairStover,
Committee ChairFill,
Committee ChairZellis,
Date: 12 December 2017
Date Type: Publication
Defense Date: 16 November 2017
Approval Date: 12 December 2017
Submission Date: 6 December 2017
Access Restriction: No restriction; Release the ETD for access worldwide immediately.
Number of Pages: 98
Institution: University of Pittsburgh
Schools and Programs: David C. Frederick Honors College
School of Health and Rehabilitation Sciences > Rehabilitation Science
Degree: BPhil - Bachelor of Philosophy
Thesis Type: Undergraduate Thesis
Refereed: Yes
Uncontrolled Keywords: Parents, Healthcare Professionals, Health Providers, Mothers
Date Deposited: 12 Dec 2017 19:25
Last Modified: 12 Dec 2017 19:25


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