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Assessing JoinLite - A Recruitment Tool for All of Us Pennsylvania

Winter, Lauren (2020) Assessing JoinLite - A Recruitment Tool for All of Us Pennsylvania. Master Essay, University of Pittsburgh.

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The goal of precision medicine is to identify the right intervention for the right patient at the right time. Genetic variation among individuals, as well as an individual's genotype by environment interactions, are important to predict therapeutic response, but historically research studies have not expanded beyond the Caucasian population. All of Us Research Program's goal is to include more people of various backgrounds into biomedical research in order to make a research database available that is reflective of human biological and lifestyle variation, which will influence our understanding of health, and effective preventative and therapeutic interventions. Studies using an inclusive database will make treatments more precise and appropriate for more types of people. In this essay, I assessed the effectiveness of one of the recruitment databases, called JoinLite, that was used by All of Us Pennsylvania. The current study provides information to researchers on a national level about the effectiveness of their recruitment initiatives to reach a broader population, especially underserved communities, such as rural communities.
Data were entered into the JoinLite participant management database to facilitate contact with individuals who were potentially interested in participating in All of Us Pennsylvania. For those who completed the initial study visit, I obtained data on location (i.e., zip code) and time to completion. Data were available form July 1 through October 31, 2018. Although the number of prospective participants varied by month, the proportion who enrolled in All of Us was similar - approximately 70%. Of the enrollees, the expected completion rate was 75% on average, and was also similar across all four months. In particular, initial results indicate that the response rate in targeted rural counties in Pennsylvania was high (>80%). Furthermore, 40-60% of those who completed their appointments lived within 5 miles of a study clinical site. These results indicate that scheduling a clinical appointment soon after enrollment and locating a clinical site within or near a community of interest, is beneficial for successful recruitment.
The public health significance of this study is to provide information regarding a few of the issues that need to be addressed to facilitate participation in research by various groups of people. My results indicate that locating clinical sites within a community of interest, such as rural communities, as well as scheduling clinical appointments within 1-2 weeks after enrollment, should facilitate participation of underrepresented groups.


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Item Type: Other Thesis, Dissertation, or Long Paper (Master Essay)
Status: Unpublished
CreatorsEmailPitt UsernameORCID
Winter, Laurenlaw169@pitt.edulaw169
ContributionContributors NameEmailPitt UsernameORCID
Committee ChairKammerer, Candacecmk3@pitt.educmk3UNSPECIFIED
Committee MemberGlynn, Nancyglynnn@edc.pitt.eduglynnnUNSPECIFIED
Date: 1 May 2020
Date Type: Submission
Number of Pages: 39
Institution: University of Pittsburgh
Schools and Programs: School of Public Health > Public Health Genetics
Degree: MPH - Master of Public Health
Thesis Type: Master Essay
Refereed: Yes
Date Deposited: 02 Sep 2020 23:54
Last Modified: 02 Sep 2020 23:54

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