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Transitioning of Care from Pediatric to Adult Providers Among Hemophilia Patients

McGee, Sarah (2020) Transitioning of Care from Pediatric to Adult Providers Among Hemophilia Patients. Master's Thesis, University of Pittsburgh. (Unpublished)

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Background: Individuals with hemophilia require lifelong specialized care. As the lifespan for individuals with hemophilia has increased, patients must transition from pediatric to adult providers. Research has shown that individuals with hemophilia face multiple barriers during this transition of care and have decreased prophylaxis regimen compliance which can have lifelong negative effects. In this study, we seek to determine the impact of transition of care on hemophilia patients who receive treatment at the Hemophilia Center of Western Pennsylvania (HCWP).
Methods: The medical records of a cohort of patients at the HCWP, aged 26 to 30, were reviewed from age 15 to their current age. Information was gathered about comprehensive visit compliance, bleeding events, and insurance coverage. Statistical analyses were performed using linear regression and summary statistics.
Results: 26 patients with hemophilia who were treated at the HCWP were included in this study. Statistical analysis did not provide evidence to suggest that there is a linear relationship between age and comprehensive visit compliance or age and bleeding events. 42.3% of the participants had at least one confirmed lapse in insurance during the time period studied.
Conclusions: The transition from pediatric to adult care providers in patients with hemophilia, treated at the HCWP, did not have an impact on comprehensive visit compliance or bleeding. Lapses in health insurance coverage are a common problem for individuals with hemophilia after age 18. Further research is needed to determine effective interventions to increase comprehensive visit compliance at all ages and interventions to increase health insurance coverage of adults.
Public Health Significance: Comprehensive visit compliance is important for monitoring the health and treatment of individuals with hemophilia and helps to reduce healthcare costs.


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Item Type: University of Pittsburgh ETD
Status: Unpublished
CreatorsEmailPitt UsernameORCID
McGee, Sarahsam411@pitt.edusam411
ETD Committee:
TitleMemberEmail AddressPitt UsernameORCID
Committee ChairXavier,
Committee MemberHillery,
Committee MemberGrubs,
Committee MemberAlabek,
Date: 31 March 2020
Date Type: Submission
Defense Date: 31 March 2020
Approval Date: 30 July 2020
Access Restriction: No restriction; Release the ETD for access worldwide immediately.
Number of Pages: 59
Institution: University of Pittsburgh
Schools and Programs: School of Public Health > Human Genetics
Degree: MS - Master of Science
Thesis Type: Master's Thesis
Refereed: Yes
Uncontrolled Keywords: Pediatric to Adult; hemophilia;
Date Deposited: 30 Jul 2020 19:09
Last Modified: 30 Jul 2020 19:09

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