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Comparison of video education and traditional genetic counseling for pancreatic cancer: Assessment of patient satisfaction and knowledge

Anneling, Mariele (2021) Comparison of video education and traditional genetic counseling for pancreatic cancer: Assessment of patient satisfaction and knowledge. Master's Thesis, University of Pittsburgh. (Unpublished)

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Abstract

The American Cancer Society estimates that in 2021 60,430 individuals will be diagnosed
with pancreatic cancer and 48,220 individuals will die from the cancer. Pancreatic ductal
adenocarcinoma (PDAC) has a 5-year survival rate of 9% largely due to the typical detection at an
advanced stage. Initiatives in the field of oncology have focused on the importance of detection of
cancer at an early stage. Genetics plays a role in early detection through the identification of a
genetic predisposition to cancer. Approximately 10% of PDAC diagnoses are due to a germline
pathogenic variant. Identification of a pathogenic variant can have implications for both the patient
and their family members. PDAC is part of several hereditary cancer predisposition syndromes
and genes that cause increased risk for multiple cancer types and have specific guidelines to
increase early detection or reduce the risk for some cancers. Pathogenic variants in certain genes
are compatible with precision therapies that can aid in treatment of PDAC.
The National Comprehensive Cancer Network (NCCN) and American Society for Clinical
Oncology (ASCO) recommend that all individuals with PDAC have a genetic evaluation and
consider germline genetic testing. Ideally, this should be done by a genetic counselor who
specializes in cancer genetic counseling. However, there continues to be a nationwide shortage of
genetic counselors. This has led to development of alternative service delivery methods.
University of Pittsburgh Medical Center (UPMC) created a short educational video about
the genetics of pancreatic cancer in effort to increase access to germline genetic testing. This study v
aimed to assess the effectiveness and patient satisfaction of this delivery method of genetic
information. Two delivery methods were compared; video education and traditional in-person
genetic counseling for individuals diagnosed with PDAC. Genetic literacy was evaluated prior to
education and knowledge and satisfaction were assessed immediately following the genetics
education. For individuals who pursued genetic testing, knowledge was assessed at an additional
timepoint.
While this study focuses on genetic counseling, these research findings are relevant to the
field of public health as it could provide baseline information advising the use of video education
in a variety of settings


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Details

Item Type: University of Pittsburgh ETD
Status: Unpublished
Creators/Authors:
CreatorsEmailPitt UsernameORCID
Anneling, Marielemaa353@pitt.edu
ETD Committee:
TitleMemberEmail AddressPitt UsernameORCID
Committee ChairDudley, Bethdudleyre@upmc.edu
Committee MemberGrubs, Robinrgrubs@pitt.edurgrubs
Committee MemberBrand, Randallbrandre@upmc.edu
Committee MemberMai, Phuongmaip@upmc.edu
Committee MemberShaffer, Johnjohn.r.shaffer@upmc.edu
Date: 12 May 2021
Date Type: Publication
Defense Date: 5 April 2021
Approval Date: 12 May 2021
Submission Date: 25 April 2021
Access Restriction: No restriction; Release the ETD for access worldwide immediately.
Number of Pages: 94
Institution: University of Pittsburgh
Schools and Programs: Graduate School of Public Health > Genetic Counseling
Degree: MS - Master of Science
Thesis Type: Master's Thesis
Refereed: Yes
Uncontrolled Keywords: N/A
Date Deposited: 13 May 2021 02:34
Last Modified: 13 May 2021 02:34
URI: http://d-scholarship.pitt.edu/id/eprint/40906

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