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A Prospective Study Assessing Cancer Patients’ Perceptions Regarding the Value of Cancer Genetic Counseling

Buchi, Elian (2024) A Prospective Study Assessing Cancer Patients’ Perceptions Regarding the Value of Cancer Genetic Counseling. Master's Thesis, University of Pittsburgh. (Unpublished)

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Hereditary Breast and Ovarian Cancer syndrome (HBOC) is a genetic condition that increases the risk for breast, ovarian, and other cancers. Due to the hereditary nature of this condition, genetic services are offered to patients with these types of cancer to help identify if a hereditary component exists. Several studies have previously investigated the attitudes of patients diagnosed with cancer towards genetic counseling and testing; however, recently diagnosed cancer patients have not received similar attention and their perspective towards the value of genetic testing has not been well studied. To fill this gap, this study was designed to further explore the perspective of patients recently diagnosed with breast or ovarian cancer, mainly at the UPMC Magee Women’s Hospital, regarding the value of genetic counseling and to assess their satisfaction levels with the services they received. An initial and a follow-up survey were administered to assess patients’ perspectives and experiences with these services after the initial visit and four weeks later to determine if patients saw these services as valuable and satisfactory. Patients were highly satisfied with the genetic counseling services and indicated that it was beneficial and helpful. Patients also saw the genetic counselor as an advocate, support system, and information provider that helped them make medical decisions, including genetic testing. The results of the study are important in that it promotes programs that offer genetic counseling services to conduct internal assessments to gain insight into their patients’ levels of satisfaction with the services they are receiving. By actively seeking patients’ feedback and addressing concerns, programs can adapt and enhance their services to better cater to the needs and interests of their patients, thus improving public health.


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Item Type: University of Pittsburgh ETD
Status: Unpublished
CreatorsEmailPitt UsernameORCID
Buchi, Elianelb212@pitt.eduelb212
ETD Committee:
TitleMemberEmail AddressPitt UsernameORCID
Committee ChairDurst, Andreaadurst@pitt.eduadurst
Committee MemberMai,
Committee MemberBourdius,
Committee MemberCarlson, Jennajnc35@pitt.edujnc35
Date: 14 May 2024
Date Type: Publication
Defense Date: 8 April 2024
Approval Date: 14 May 2024
Submission Date: 21 April 2024
Access Restriction: No restriction; Release the ETD for access worldwide immediately.
Number of Pages: 41
Institution: University of Pittsburgh
Schools and Programs: School of Public Health > Genetic Counseling
Degree: MS - Master of Science
Thesis Type: Master's Thesis
Refereed: Yes
Uncontrolled Keywords: Cancer Recently diagnosed patients Breast and ovarian cancer Value of genetic counseling Satisfaction with genetic counseling
Date Deposited: 14 May 2024 19:23
Last Modified: 14 May 2024 19:23


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