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An Assessment of the Factors Associated with the Willingness of African Americans to Participate in a Minority Research Recruitment Database

Smith, Andrea Lynne (2010) An Assessment of the Factors Associated with the Willingness of African Americans to Participate in a Minority Research Recruitment Database. Master's Thesis, University of Pittsburgh. (Unpublished)

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OBJECTIVES: The objective of this study is to determine factors which may affect Health Black Family Project members' participation in the Minority Research Recruitment Database (MRRD), as established through the Center for Minority Health and the Family Health History initiative. METHODS: MRRD enrollment was offered to 799 African American individuals after participation in a Family Health History session. Of the 799 offered enrollment, 599 (75.0%) agreed to enroll in the database and to be contacted regarded clinical research studies for which they may qualify. Factors assessed to determine their influence on willingness to enroll include demographic data, research attitudes, objective and perceived disease risks, weight, physical activity level, student interviewer, and the degree of control which people believe they possess over their personal health as measured by the Multidimensional Health Locus of Control questionnaire. Chi-square analyses and logistic regression were undertaken to compare these factors with willingness to enroll in the database. RESULTS: Analyses indicate that the following factors significantly affect willingness to enroll in the MRRD: being over age 65, health insurance status, research attitudes, previously declining research participation, reaction to incentives of money and free medical care, how much they believe family and friends benefit from research, degree to which they believe diet contributes to disease risk, student interviewer, Multidimensional Health Locus of Control Powerful Others scale, and self-described weight. Logistic regression of selected variables determined that reaction to monetary incentives, student interviewer, and self-described weight are key factors which may influence MRRD enrollment. CONCLUSIONS: The infrastructure of the MRRD has been shown to be an effective method for recruiting African Americans into a research database. Several factors have emerged as important in the determination of willingness to enroll, which represent both replications of the known literature and new findings unique to this research. PUBLIC HEALTH SIGNIFICANCE: African Americans are underrepresented in many areas of medical and public health research. More effective strategies are needed to increase recruitment into research studies by understanding factors presented here which may play a role in an individual's choice to participate in research.


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Item Type: University of Pittsburgh ETD
Status: Unpublished
CreatorsEmailPitt UsernameORCID
Smith, Andrea Lynneals160@pitt.eduALS160
ETD Committee:
TitleMemberEmail AddressPitt UsernameORCID
Committee ChairThomas, Stephen Bsbthomas@pitt.eduSBTHOMAS
Committee MemberKammerer, Candacecmk3@pitt.eduCMK3
Committee MemberFryer, Craig Scsf5@pitt.eduCSF5
Committee MemberGettig, Eliabethbgettig@pitt.eduBGETTIG
Committee MemberButler, Jamesjbutler9@pitt.eduJBUTLER9
Committee MemberGarza, Mary Amgarza@pitt.eduMGARZA
Committee MemberGrubs, Robin Ergrubs@pitt.eduRGRUBS
Date: 28 June 2010
Date Type: Completion
Defense Date: 31 March 2010
Approval Date: 28 June 2010
Submission Date: 9 April 2010
Access Restriction: No restriction; Release the ETD for access worldwide immediately.
Institution: University of Pittsburgh
Schools and Programs: School of Public Health > Genetic Counseling
Degree: MS - Master of Science
Thesis Type: Master's Thesis
Refereed: Yes
Uncontrolled Keywords: African American; Black; Recruitment; Research
Other ID:, etd-04092010-135634
Date Deposited: 10 Nov 2011 19:35
Last Modified: 15 Nov 2016 13:39


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