Lindell, Kathleen Oare
(2008)
IMPROVING END-OF-LIFE CARE FOR PATIENTSWITH IDIOPATHIC PULMONARY FIBROSIS AND THEIR CARE PARTNERS.
Doctoral Dissertation, University of Pittsburgh.
(Unpublished)
Abstract
Palliative care is increasingly recognized as relevant to the care of advanced disease in a variety of settings. Idiopathic pulmonary fibrosis (IPF) results in scarring of the lung, respiratory failure and, commonly, death within 3-5 years of diagnosis. The purpose of this study was to evaluate the impact of a 6-week program designed using palliative care concepts (PRISIM) on symptom burden and health-related quality of life (HRQoL) in patients with IPF and their care partners. Subjects were 42 participants randomized to an experimental (10 patients/care partners) or control (11 patients/care partners) group. The experimental group attended the 6-week PRISIM program and the control group received usual care. Prior to and immediately after attending the program, all participants completed questionnaires designed to assess anxiety, depression, perceived stress, and HRQoL. Participation in PRISIM decreased perceptions of physical HRQoL and tended to increase anxiety. Nevertheless, post course evaluations were highly positive. Post study qualitative interviews with experimental group participants yielded three common themes that reached saturation: "patients did not feel isolated", were "able to put their disease into perspective", and felt it "important to participate in research and help others". Palliative interventions may increase anxiety but appear to yield other positive effects. Further exploration of the impact of such interventions is needed using both qualitative and quantitative methodology.
Share
| Citation/Export: |
|
| Social Networking: |
|
Details
| Item Type: |
University of Pittsburgh ETD
|
| Status: |
Unpublished |
| Creators/Authors: |
|
| ETD Committee: |
|
| Date: |
15 April 2008 |
| Date Type: |
Completion |
| Defense Date: |
26 September 2007 |
| Approval Date: |
15 April 2008 |
| Submission Date: |
14 April 2008 |
| Access Restriction: |
No restriction; Release the ETD for access worldwide immediately. |
| Institution: |
University of Pittsburgh |
| Schools and Programs: |
School of Nursing > Nursing |
| Degree: |
PhD - Doctor of Philosophy |
| Thesis Type: |
Doctoral Dissertation |
| Refereed: |
Yes |
| Uncontrolled Keywords: |
Care Partners; End of life decision making; Patients with Idiopathic Pulmonary Fibrosis |
| Other ID: |
http://etd.library.pitt.edu/ETD/available/etd-04142008-131220/, etd-04142008-131220 |
| Date Deposited: |
10 Nov 2011 19:37 |
| Last Modified: |
19 Dec 2016 14:35 |
| URI: |
http://d-scholarship.pitt.edu/id/eprint/7156 |
Metrics
Monthly Views for the past 3 years
Plum Analytics
Actions (login required)
 |
View Item |
![[feed]](/images/feed-icon-32x32.png){kind=icon}