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The Tuskegee Syphilis Study: Access and Control over Controversial Records

Whorley, Tywanna (2006) The Tuskegee Syphilis Study: Access and Control over Controversial Records. Doctoral Dissertation, University of Pittsburgh. (Unpublished)

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Abstract

As the nation's archives, the National Archives and Records Administration (NARA) preservesand provides access to records that document how our government conducts business on behalfof the American people—past and present. For the American citizen, NARA provides a form ofaccountability through the records within its custody which affect the nation's collectivememory. A plethora of these records, however, contain evidence of the federal government'smisconduct in episodes in American history which affected public trust. The Tuskegee SyphilisStudy records are a prime example of records within the custody of NARA that continue to havea lasting affect on public trust in the federal government. Even though NARA disclosed administrative records that document the government's role in the study, the Tuskegee Syphilis Study records continue to challenge the institution on a variety of archival issues such as access, privacy, collective memory, and accountability. Through historical case study methodology, this study examines the National Archives and Records Administration's administrative role in maintaining and providing access to the Tuskegee Syphilis Study records, especially the restricted information. The effect of the changing social context on NARA's recordkeeping practices of the Tuskegee Syphilis Study records is also explored.


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Details

Item Type: University of Pittsburgh ETD
Status: Unpublished
Creators/Authors:
CreatorsEmailPitt UsernameORCID
Whorley, Tywannawhorley@simmons.edu
ETD Committee:
TitleMemberEmail AddressPitt UsernameORCID
Committee ChairCox, Richardrjcox@pitt.eduRJCOX
Committee MemberYakel, Elizabethyakel@mich.edu
Committee MemberDetlefsen, Ellenellen@mail.sis.pitt.eduELLEN
Committee MemberTrotter, Joetrotter@andrew.cmu.edu
Committee MemberKimmel, Margaretmaggie@mail.sis.pitt.edu
Committee MemberThomas, Stephensbthomas@pitt.eduSBTHOMAS
Date: 6 October 2006
Date Type: Completion
Defense Date: 17 May 2006
Approval Date: 6 October 2006
Submission Date: 23 August 2006
Access Restriction: No restriction; Release the ETD for access worldwide immediately.
Institution: University of Pittsburgh
Schools and Programs: School of Information Sciences > Information Science
Degree: PhD - Doctor of Philosophy
Thesis Type: Doctoral Dissertation
Refereed: Yes
Uncontrolled Keywords: memory; privacy; records; syphilis; tuskgee
Other ID: http://etd.library.pitt.edu/ETD/available/etd-08232006-130621/, etd-08232006-130621
Date Deposited: 10 Nov 2011 20:01
Last Modified: 15 Nov 2016 13:49
URI: http://d-scholarship.pitt.edu/id/eprint/9244

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