Klawson, Emily
(2023)
A qualitative analysis of burden among family caregivers of people with Parkinson's disease psychosis for the development of a physician clinical education tool.
Master Essay, University of Pittsburgh.
Abstract
Parkinson’s disease (PD) is one of the leading causes of disability amongst older adults in the United States. PD is of public health significance as it is associated with severe morbidity and quality of life impacts for both the individuals with PD and their family caregivers. Psychiatric symptoms are an underrecognized source of morbidity and caregiving burden in PD, and online resources for those diagnosed with PD often lack sufficient guidance on these symptoms. The purpose of this study is to understand the experience of burden in family caregivers of individuals with PD psychosis (PDP) to inform the development of a physician clinical education tool. Transcripts of nine in-depth semi-structured telephone interviews with caregivers of individuals with PD were qualitatively analyzed and a thematic codebook was developed. The most frequent themes were interpreted as the most salient to the caregiver experience and should be focal points of the education tool. Results revealed that physicians did not routinely ask about psychosis symptoms at appointments, leading to caregivers being unaware of this aspect of PD. Caregivers also expressed the importance of attending caregiver support or other types of supportive groups to manage their mental health, and that they primarily relied on receiving paper resources from their doctor’s office to learn about PD. The future development of a physician clinical education tool, informed by the insights from this analysis on the lived experiences and recommendations of caregivers, would educate healthcare providers on what is truly important to their patients with PDP and their caregivers, and enable them to provide more informed and effective care.
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| Item Type: |
Other Thesis, Dissertation, or Long Paper
(Master Essay)
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| Status: |
Unpublished |
| Creators/Authors: |
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| Contributors: |
| Contribution | Contributors Name | Email | Pitt Username | ORCID  |
|---|
| Thesis advisor | Albert, Steven | smalbert@pitt.edu | smalbert | UNSPECIFIED | | Committee Member | Chahine, Lana | lanachahine@pitt.edu | lmc156 | UNSPECIFIED |
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| Date: |
29 August 2023 |
| Date Type: |
Completion |
| Submission Date: |
1 April 2020 |
| Access Restriction: |
No restriction; Release the ETD for access worldwide immediately. |
| Number of Pages: |
66 |
| Institution: |
University of Pittsburgh |
| Schools and Programs: |
School of Public Health > Behavioral and Community Health Sciences |
| Degree: |
MPH - Master of Public Health |
| Thesis Type: |
Master Essay |
| Refereed: |
Yes |
| Uncontrolled Keywords: |
Parkinson's disease, Pakinson's disease psychosis, clinical education tool |
| Date Deposited: |
29 Aug 2023 18:06 |
| Last Modified: |
29 Aug 2023 18:06 |
| URI: |
http://d-scholarship.pitt.edu/id/eprint/38553 |
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