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Black and African American lived experiences of stroke

Antoan, Jordann (2022) Black and African American lived experiences of stroke. Undergraduate Thesis, University of Pittsburgh. (Unpublished)

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Abstract

People who are African American have a greater propensity for stroke, sustain more severe
disability, and experience less functional recovery compared to people who are White. However,
the experiences and perspectives of this population have not been thoroughly explored. This study
explored perspectives about stroke, healthcare, and rehabilitation among people who are African
American and sustained a stroke. We conducted 13 semi-structured interviews examining the
perspectives and experiences of adults who: (1) identified as Black or African American and (2)
sustained a stroke at least 3 months prior to the interview. Participants were recruited through
electronic advertisements on social media sites, presentations at local support groups and
rehabilitation centers, university research registries, and previous stroke rehabilitation studies.
Interviews were transcribed verbatim and checked for accuracy before undergoing coding and
thematic analyses conducted by a team of rehabilitation and health disparity scientists. Four major
themes emerged: 1) Intersectionality of Race, Health, and Healthcare, 2) Healthcare Access,
Quality, 3) Provider Interactions and Communication, and 4) Tensions Between Expectations and
Experiences. Multiple sub-themes pertained to provider-patient listening and understanding, trust,
education, and patient and family agency, as well as cultural norms and autonomous decision
making. Major themes and sub-themes draw awareness to and educate healthcare professionals on
the nuanced experiences of African American people after stroke; and point to focused strategies
for provider training, community education, and improved healthcare access and quality to be more
responsive to the needs of this population.


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Details

Item Type: University of Pittsburgh ETD
Status: Unpublished
Creators/Authors:
CreatorsEmailPitt UsernameORCID
Antoan, Jordannjca51@pitt.edu
ETD Committee:
TitleMemberEmail AddressPitt UsernameORCID
Thesis AdvisorSkidmore, Elizabethjca51@pitt.edu
Committee MemberBrach, Jenniferjbrach@pitt.edu
Committee MemberHammel, Joyhammel@uic.edu
Committee MemberWilliams, Lilcelialaw193@pitt.edu
Committee MemberHarris, Tinatmh113@pitt.edu
Date: 23 April 2022
Date Type: Publication
Defense Date: 28 March 2022
Approval Date: 23 April 2022
Submission Date: 15 April 2022
Access Restriction: 1 year -- Restrict access to University of Pittsburgh for a period of 1 year.
Number of Pages: 49
Institution: University of Pittsburgh
Schools and Programs: School of Health and Rehabilitation Sciences > Rehabilitation Science
David C. Frederick Honors College
Degree: BPhil - Bachelor of Philosophy
Thesis Type: Undergraduate Thesis
Refereed: Yes
Uncontrolled Keywords: Stroke, African American, Black, Healthcare
Date Deposited: 23 Apr 2022 16:32
Last Modified: 23 Apr 2023 05:15
URI: http://d-scholarship.pitt.edu/id/eprint/42627

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