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Developing a Multi-Component Mobile Health App to Provide Ongoing Support for Family Caregivers of People with Chronic Conditions and Disabilities

Hu, Haomin (2025) Developing a Multi-Component Mobile Health App to Provide Ongoing Support for Family Caregivers of People with Chronic Conditions and Disabilities. Doctoral Dissertation, University of Pittsburgh. (Unpublished)

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Abstract

Over 20% of Americans, approximately 53 million adults, are family caregivers providing long-term care for an adult or a child, particularly those with chronic conditions and disabilities. While providing a valued service to relatives, family caregivers are at considerable risk of adverse physical, mental, and social health outcomes. Often starting their caregiving roles with minimal training and being tired of getting familiar with the role, they tend to neglect their own health to satisfy caregiving demands. Comprehensive and continuous support for family caregivers remains scarce. Mobile health apps have the potential to bridge the gap by providing multi-component portable support on caregiving skills, self-care, and socialization. This dissertation employs user-centered approaches throughout the process to develop and evaluate a mobile health app to support family caregivers of individuals with chronic conditions and disabilities on self-care and caregiving skill training. The app is tailored to assist with general and condition-specific caregiving and is adaptable for various family caregiver populations. Aligning with user-centered approach principles, one focus group, two co-design workshops, and one pilot test focusing on usability, accessibility, and feasibility were employed to examine the results. New FCG challenges and unmet needs were revealed from the dissertation studies. Additionally, feedback from participating family caregivers suggested design criteria and development guidelines, which took into account family caregiver needs, usability, accessibility, and security to inform the future development and iterations of this and similar family-caregiver-focused mobile health supports. After the pilot test, family caregivers indicated that the app is user-friendly, holds the potential to expand in future studies, and supports family caregivers in real-world settings.


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Details

Item Type: University of Pittsburgh ETD
Status: Unpublished
Creators/Authors:
CreatorsEmailPitt UsernameORCID
Hu, Haominhah90@pitt.eduhah900000-0001-9200-062X
ETD Committee:
TitleMemberEmail AddressPitt UsernameORCID
Committee CoChairParmanto, Bambangparmanto@pitt.eduPARMANTO
Committee CoChairChoi, Yong K.yong.choi@pitt.eduyong.choi
Committee MemberDicianno, Brad E.dicianno@pitt.edudicianno
Committee MemberDonovan, Heididonovanh@pitt.edudonovanh
Committee MemberSaptono, Andiandi.saptono@pitt.eduANS38
Date: 25 February 2025
Date Type: Publication
Defense Date: 31 October 2024
Approval Date: 25 February 2025
Submission Date: 5 December 2024
Access Restriction: No restriction; Release the ETD for access worldwide immediately.
Number of Pages: 219
Institution: University of Pittsburgh
Schools and Programs: School of Health and Rehabilitation Sciences > Rehabilitation Science
Degree: PhD - Doctor of Philosophy
Thesis Type: Doctoral Dissertation
Refereed: Yes
Uncontrolled Keywords: Mobile health, family caregivers, Chronic conditions and disabilities
Related URLs:
Date Deposited: 25 Feb 2025 16:02
Last Modified: 25 Feb 2025 16:02
URI: http://d-scholarship.pitt.edu/id/eprint/47175

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