Swann, Frank
(2022)
Attitudes Towards and Perceptions of Clinical Genetic Testing Among Pacific Islanders Living in the United States and US-Affiliated Pacific Islands(USAPI)
Islanders Living in the United States and US-Affiliated Pacific Islands (USAPI).
Master's Thesis, University of Pittsburgh.
(Unpublished)
This is the latest version of this item.
Abstract
Background: A core value of the ethical, legal, and social implications (ELSI) of genetic research is the concept of public and provider education. Many studies to date have solicited attitudes of the general public in several parts of the world to assess baseline knowledge and attitudes, but there exist several gaps in the literature regarding attitudes towards genetic testing among Pacific Islanders. Methods: A survey was developed composed of questions from the literature and shared with Pacific Islander com-munities in the mainland United States and US-Affiliated Pacific Islands (USAPI). The survey asked participants to provide demographic information, answer true/false questions based on genetic concepts, and share their attitudes and perceptions toward genetic testing, medical family history, and preferences for return of results. Results: As a group, the average correct score on the genetic knowledge measure was 77.7%. Participants (N = 65) had limited experiences with genetics, including genetic testing (10.8%), genetic counseling (1.6%), and genetic research (1.5%). In the assessment of attitudes toward clinical testing, where, out of a possible 65 points, higher scores correlated with more favorable attitudes towards genetic testing, the average score was 50.38. A majority (84.6%) agreed either somewhat or strongly to the use of genetic testing for early detection of disease. Over 90% agreed, to some extent, that collecting family health history is important for understanding their own or their family’s disease risk. Of those sampled, 68.3% would want to receive any results if they participated in a health-related research study, including non-actionable results. Over three-quarters ex-pressed interest in receiving secondary results concerning personal health, regardless of whether it is for an illness that is treatable or untreatable. Conclusions: Participants in this study have demonstrated an interest in clinical genetic testing, recognize the value of medical family history for personal health, and endorsed openness to receiving genetic testing results and secondary results both actionable and non-actionable. However, there are still many barriers increasing access to genetic testing in Pacific Islander communities, including basic information such as prevalence of genetic disease among communities.
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Details
| Item Type: |
University of Pittsburgh ETD
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| Status: |
Unpublished |
| Creators/Authors: |
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| ETD Committee: |
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| Date: |
1 July 2022 |
| Date Type: |
Publication |
| Defense Date: |
21 June 2022 |
| Approval Date: |
1 July 2022 |
| Submission Date: |
24 June 2022 |
| Access Restriction: |
2 year -- Restrict access to University of Pittsburgh for a period of 2 years. |
| Number of Pages: |
164 |
| Institution: |
University of Pittsburgh |
| Schools and Programs: |
School of Public Health > Human Genetics |
| Degree: |
MS - Master of Science |
| Thesis Type: |
Master's Thesis |
| Refereed: |
Yes |
| Uncontrolled Keywords: |
ELSI |
| Additional Information: |
Combined Master's Thesis and MPH Essay document |
| Date Deposited: |
01 Jul 2022 19:05 |
| Last Modified: |
01 Jul 2024 05:15 |
| URI: |
http://d-scholarship.pitt.edu/id/eprint/43227 |
Available Versions of this Item
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Attitudes Towards and Perceptions of Clinical Genetic Testing Among Pacific Islanders Living in the United States and US-Affiliated Pacific Islands(USAPI)
Islanders Living in the United States and US-Affiliated Pacific Islands (USAPI). (deposited 01 Jul 2022 19:05)
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